{"id":191,"date":"2025-03-25T21:15:41","date_gmt":"2025-03-25T20:15:41","guid":{"rendered":"https:\/\/www.sos-pas.sk\/?page_id=191"},"modified":"2025-10-03T10:37:50","modified_gmt":"2025-10-03T08:37:50","slug":"knihy-o-pas-z-perspektivy-rodicov-ci-surodencov","status":"publish","type":"page","link":"https:\/\/www.sos-pas.sk\/?page_id=191","title":{"rendered":"Knihy o PAS z perspekt\u00edvy rodi\u010dov \u010di s\u00farodencov"},"content":{"rendered":"\n

Z poh\u013eadu matky<\/strong>:<\/p>\n\n\n\n

Mat\u011bj maluje mapy<\/a>. Michaela Ho\u0161kov\u00e1<\/p>\n\n\n\n

Ke\u010f dva a dva je p\u00e4\u0165 (Z\u00e1pisn\u00edk matky)<\/a>. L\u00fddia Podobn\u00e1<\/p>\n\n\n\n

Z\u00e1pisky m\u00e1my autisty<\/a>. Hana Hnili\u010dkov\u00e1<\/p>\n\n\n\n

Maminko, nezp\u00edvej<\/a>. Jana Makovcov\u00e1<\/p>\n\n\n\n

S rukama na u\u0161\u00edch<\/a>. Jana Makovcov\u00e1<\/p>\n\n\n\n

Z poh\u013eadu otca<\/strong>:<\/p>\n\n\n\n

Mil\u00fd Gabrieli. Halfdan W. Freihow<\/a><\/p>\n\n\n\n

Z poh\u013eadu s\u00farodenca<\/strong>:<\/p>\n\n\n\n

Br\u00e1cha nen\u00ed aspar\u00e1gus<\/a>. V\u011bra Hud\u00e1\u010dkov\u00e1 Barochov\u00e1<\/p>\n\n\n\n

Z poh\u013eadu star\u00e9ho otca<\/strong>:<\/p>\n\n\n\n

Dopisy Samovi : D\u011bde\u010dkova vypr\u00e1v\u011bn\u00ed o l\u00e1sce, ztr\u00e1t\u011b i darech \u017eivota. Daniel Gottlieb<\/a><\/p>\n\n\n\n

Mat\u011bj maluje mapy<\/strong><\/h2>\n\n\n\n

Mat\u011bj maluje mapy, Michaela Ho\u0161kov\u00e1, Port\u00e1l, 2020, 208 s., \u010desk\u00fd jazyk<\/strong><\/p>\n\n\n

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Zdroj: www.portal.cz<\/a><\/figcaption><\/figure>\n<\/div>\n\n\n

     <\/strong>Kr\u00e1sna, in\u0161piruj\u00faca a n\u00e1dej d\u00e1vaj\u00faca kniha, ktor\u00fa n\u00e1pisala maminka autistick\u00e9ho chlapca a zachytila v nej \u017eivot ich rodiny v priebehu nieko\u013ek\u00fdch rokov. To n\u00e1m umo\u017e\u0148uje sledova\u0165 \u0161pecifik\u00e1 jednotliv\u00fdch \u017eivotn\u00fdch obdob\u00ed, vr\u00e1tane narodenia mlad\u0161ej sestry Sofie a ich s\u00farodeneck\u00e9ho vz\u0165ahu.<\/p>\n\n\n\n

     Obdivujem maminku, ako sa nikdy nevzdala, aj ke\u010f niekedy bola k tomu bl\u00edzko. V\u017edy sa v\u0161ak dok\u00e1zala op\u00e4\u0165 postavi\u0165, \u00eds\u0165 vpred a s h\u00fa\u017eevnatos\u0165ou, vytrvalos\u0165ou a odhodlanos\u0165ou bojova\u0165 za lep\u0161\u00ed \u017eivot pre svojho syna. Neust\u00e1le h\u013eadanie mo\u017enost\u00ed vo vzdel\u00e1vacom syst\u00e9me ako aj h\u013eadan\u00ed a podporovan\u00ed siln\u00fdch str\u00e1nok die\u0165a\u0165a, st\u00e1lo za to, preto\u017ee mu to umo\u017en\u00ed uplatni\u0165 sa v bud\u00facnosti v tom, \u010do ho naozaj bav\u00ed.<\/p>\n\n\n\n

     Kniha je p\u00edsan\u00e1 z poh\u013eadu mamy autistick\u00e9ho chlapca z \u010desk\u00e9ho prostredia, v\u010faka \u010domu bude kontext bl\u00edzky aj  slovensk\u00e9mu \u010ditate\u013eovi. Kniha sa \u010d\u00edta r\u00fdchlo a je ilustrovan\u00e1 Matejov\u00fdmi grafikami.<\/p>\n\n\n\n

Ke\u010f dva a dva je p\u00e4\u0165 (Z\u00e1pisn\u00edk matky)<\/strong><\/h2>\n\n\n\n

Ke\u010f dva a dva je p\u00e4\u0165 (Z\u00e1pisn\u00edk matky), L\u00fddia Podobn\u00e1, Porta Libri, 2016, 136 s.<\/strong><\/p>\n\n\n

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Zdroj: www.porta.sk<\/a><\/figcaption><\/figure>\n<\/div>\n\n\n

Je to \u00fatla kni\u017eka nap\u00edsan\u00e1 maminkou \u0161tyroch det\u00ed (dvaja chlapci a dve diev\u010dat\u00e1). Najstar\u0161\u00ed syn m\u00e1 Aspergerov syndr\u00f3m. O AS sa ve\u013ea nedozvieme, sk\u00f4r \u00fatr\u017ekami najm\u00e4 na za\u010diatku knihy: vysvet\u013euje, ako je to s komunik\u00e1ciou, o prijat\u00ed diagn\u00f3zy, uvedomuje si potreby ostatn\u00fdch det\u00ed. Najsk\u00f4r p\u00ed\u0161e o ka\u017edom die\u0165ati zvl\u00e1\u0161\u0165, potom nasleduj\u00fa rodinn\u00e9 pr\u00edbehy. Pridanou hodnotou je, \u017ee autorka p\u00ed\u0161e z perspekt\u00edvy veriacej rodiny a o vieru sa opiera. V knihe s\u00fa pekn\u00e9 my\u0161lienky, za v\u0161etky vyber\u00e1m nasleduj\u00facu: „H\u013eadajme v druh\u00fdch to dobr\u00e9, i ke\u010f zdanlivo v nich ni\u010d dobr\u00e9 nie je<\/em>“ (s. 25).<\/p>\n\n\n\n

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Z\u00e1pisky m\u00e1my autisty<\/strong><\/h2>\n\n\n\n

Z\u00e1pisky m\u00e1my autisty : Zapsan\u00e9 s velk\u00fdm nadhladem a malou nads\u00e1zkou. Vydan\u00e9 na pomoc a s l\u00e1skou. Hana Hnili\u010dkov\u00e1, 2024, 94 s.<\/strong><\/p>\n\n\n

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Zdroj: www..eshop.librix.eu<\/a><\/figcaption><\/figure>\n<\/div>\n\n\n

Vybran\u00e9 momenty zo \u017eivota mamy, ktor\u00e1 sa s l\u00e1skou star\u00e1 o svojho syna s \u0165a\u017ek\u00fdm autizmom. V knihe prezr\u00e1dza, \u010do ju ako mamu die\u0165atka s autizmom dok\u00e1\u017ee pote\u0161i\u0165. Poodhal\u00ed aj n\u00e1ro\u010dn\u00e9 chv\u00edle, ktor\u00fdm neust\u00e1le \u010del\u00ed ako napr\u00edklad sp\u00e1nkov\u00fd deficit. Autorka p\u00ed\u0161e jednoducho, vtipne a p\u00fatavo. Rob\u00ed osvetu autizmu a z\u00e1rove\u0148 poukazuje na \u017eivot rodi\u010dov staraj\u00facich sa o die\u0165atko, ktor\u00e9 si z r\u00f4znych d\u00f4vodov vy\u017eaduje ich 24-hodinov\u00fa starostlivos\u0165.<\/p>\n\n\n\n

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Maminko, nezp\u00edvej<\/strong><\/h2>\n\n\n\n

Maminko, nezp\u00edvej. Jana Makovcov\u00e1, Almi, 2009, 124 s.<\/strong><\/p>\n\n\n

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Zdroj: www.preskoly.sk<\/a><\/figcaption><\/figure>\n<\/div>\n\n\n

Kniha je nap\u00edsan\u00e1 maminkou dvoch, vtedy e\u0161te mal\u00fdch autistick\u00fdch chlapcov, R\u00ed\u0161a a Jind\u0159i\u0161ek. V tejto prvej knihe sa zameriava najm\u00e4 na \u017eivot chlapcov, ich rann\u00e9 detstvo. Aj napriek ta\u017ek\u00e9mu \u017eivotn\u00e9mu osudu obidvoch synov, knihu nap\u00edsala s nadh\u013eadom a humorom.<\/p>\n\n\n\n

V nasleduj\u00facich riadkoch sa ur\u010dite n\u00e1jde nejeden rodi\u010d neverb\u00e1lneho die\u0165atka s autizmom. „I u n\u00ed (u logopedky) je ale \u010dekac\u00ed doba na konzultaci dlouh\u00e1. Ub\u00edhaj\u00ed t\u00fddny, m\u011bs\u00edce a j\u00e1 za\u010d\u00edn\u00e1m ch\u00e1pat, \u017ee nem\u00e1 cenu \u010dekat. Jdu koupit lamin\u00e1tor na laminov\u00e1n\u00ed karti\u010dek a metry such\u00e9ho zipu. Po noc\u00edch \u010dtu p\u0159\u00edru\u010dku, tisknu a laminuju. Budeme se, R\u00ed\u0161o, u\u010dit mluvit. P\u0159es obr\u00e1zky. Nebudeme \u010dekat na z\u00e1zrak a pust\u00edme se do toho sami<\/em>“ (str. 25).<\/p>\n\n\n\n

S rukama na u\u0161\u00edch<\/strong><\/h2>\n\n\n\n

S rukama na u\u0161\u00edch. Jana Makovcov\u00e1, Almi, 2010, 128 s.<\/strong><\/p>\n\n\n

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Zdroj: www.preskoly.sk<\/a><\/figcaption><\/figure>\n<\/div>\n\n\n

V tejto druhej knihe sa autorka s\u00fastredi viac aj na rodi\u010dov.<\/p>\n\n\n\n

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Mil\u00fd Gabrieli<\/strong><\/h2>\n\n\n\n

Mil\u00fd Gabrieli. Halfdan W. Freihow, Kalich, 2010, 144 s., \u010desk\u00fd jazyk<\/strong><\/p>\n\n\n

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Zdroj: www.databazeknih.cz<\/a><\/figcaption><\/figure>\n<\/div>\n\n\n

Ak sa e\u0161te len s problematikou autizmu zoznamujete, nechajte si t\u00fato knihu na nesk\u00f4r. Autor m\u00e1 trochu \u0165a\u017e\u0161\u00ed \u0161t\u00fdl p\u00edsania, na ktor\u00fd si je potrebn\u00e9 zvykn\u00fa\u0165. No potom na v\u00e1s \u010dak\u00e1 kniha pln\u00e1 hlbokej a nekone\u010dnej l\u00e1sky otca k synovi, ktor\u00fd m\u00e1 atypick\u00fd autizmus a ADHD. <\/p>\n\n\n\n

Okrem otca nach\u00e1dza Gabriel bezbreh\u00fa l\u00e1sku, starostlivos\u0165, trpezlivos\u0165, pochopenie a podporu aj u svojej mamy a star\u0161ej sestry. Hrdos\u0165 a p\u00fdcha rodi\u010dov sa strieda s ich \u00fanavou, nedostatkom energie, z\u00fafalstvom, boles\u0165ou, expl\u00f3ziou nezvl\u00e1dnute\u013en\u00e9ho hnevu \u010di chu\u0165ou v\u0161etko vzda\u0165. To v\u0161etko m\u00e1 dopad na cel\u00fa rodinu, star\u0161iu sestru, ako aj na man\u017eelstvo Gabrielovych rodi\u010dov, ktor\u00fdm sa i napriek n\u00e1ro\u010dnosti situ\u00e1cie podarilo n\u00e1js\u0165 sp\u00f4sob, ako spolu \u010falej fungova\u0165. O tomto v\u0161etkom ve\u013emi otvorene p\u00ed\u0161e na str. 96-99.<\/p>\n\n\n\n

Podporu dost\u00e1va Gabriel aj v \u0161kole od u\u010dite\u013eov a spolu\u017eiakov: „Jsi „skv\u011bl\u00fd“, „\u00fa\u017easn\u00fd“, p\u00ed\u0161ou ti do \u017e\u00e1kovsk\u00e9 kn\u00ed\u017eky, „v\u00fdborn\u00fd kluk“. I kdy\u017e je ob\u010das kousne\u0161, pra\u0161t\u00ed\u0161, kopne\u0161, hod\u00ed\u0161 po nich kamenem, nebo jim ute\u010de\u0161… A kdy\u017e jsi \u00fapln\u011b nezvladateln\u00fd, sv\u00fdm st\u0159\u00edzliv\u00fdm zp\u016fsobem prost\u011b usoud\u00ed, \u017ee „nem\u00e1\u0161 dobr\u00fd den““ (str. 55).<\/p>\n\n\n\n

Ide o list, ktor\u00fd p\u00ed\u0161e otec svojmu synovi. Gabriel m\u00e1 dvoch star\u0161\u00edch bratov a sestru. Otec sa v liste zam\u00fd\u0161\u013ea nad rozmanit\u00fdmi t\u00e9mami ako s\u00fa nekon\u010diace ot\u00e1zky: Ale pre\u010do?, predv\u00eddate\u013enos\u0165, sm\u00fatok, hnev, sp\u00e1nok, ve\u013ek\u00e9 rodinn\u00e9 stretnutie, porozumenie \u010dasu, jazyk, vpravo\/ v\u013eavo na ceste, paradox, spolo\u010dn\u00e9 chv\u00edle pred ve\u010dern\u00fdm zasp\u00e1van\u00edm, man\u017eelstvo, vlastn\u00e1 rodina, milostn\u00e9 vz\u0165ahy.<\/p>\n\n\n\n

Gabriel kladie otcovi ot\u00e1zky, nad ktor\u00fdmi sa zam\u00fd\u0161\u013eaj\u00fa rodi\u010dia v\u0161etk\u00fdch det\u00ed s v\u00e1\u017enymi diagn\u00f3zami: Pre\u010do nie som rovnak\u00fd ako ostatn\u00ed? S\u00fa nebezpe\u010dn\u00e9 moje probl\u00e9my? Budem sa m\u00f4c\u0165 o\u017eeni\u0165, ke\u010f budem dospel\u00fd? Kto sa o m\u0148a bude stara\u0165, ke\u010f budem dospel\u00fd a ty i mama umriete a ja u\u017e u v\u00e1s nebudem m\u00f4c\u0165 b\u00fdva\u0165?<\/p>\n\n\n\n

Nepodarilo sa mi zisti\u0165, \u010di ide o fikciu alebo je autor naozaj otcom v\u00fdnimo\u010dn\u00e9ho die\u0165a\u0165a. Ka\u017edop\u00e1dne, jednotliv\u00e9 situ\u00e1cie vystihuje naozaj trefne.<\/p>\n\n\n\n

„Znovu a znovu jsem si opakoval: Bo\u017ee, pomoz mi, a\u0165 to ud\u011bl\u00e1, a\u0165 naru\u0161\u00ed vlastn\u00ed pravidla, a\u0165 se odv\u00e1\u017e\u00ed ud\u011blat to, co nebylo napl\u00e1nov\u00e1no, co nen\u00ed p\u0159ipraveno, a\u0165 si v\u011bdom\u011b vybere to, co nen\u00ed tak, jak b\u00fdv\u00e1 obvykle“ (str. 24).<\/p>\n\n\n\n

„Na\u0161i volbu ur\u010dovala dv\u011b p\u0159\u00e1n\u00ed: abys \u017eil co nejv\u011bt\u0161\u00ed m\u011brou \u017eivot srovnateln\u00fd s jin\u00fdmi lidmi a abys dostal co nejv\u00edc p\u0159\u00edle\u017eitost\u00ed za\u017e\u00edt to, \u010demu s\u00e1m \u0159\u00edk\u00e1\u0161 \u0161t\u011bst\u00ed. […] Proto sah\u00e1me zpravidla k tomu, co n\u00e1m p\u0159ipad\u00e1 nejp\u0159irozen\u011bj\u0161\u00ed: Zahrnout t\u011b bezpe\u010d\u00edm, chv\u00e1lou a l\u00e1skou (str. 36).<\/p>\n\n\n\n

„Ale s\u00e1m nedok\u00e1\u017ee\u0161 situaci „p\u0159e\u010d\u00edst“ a pochopit z m\u00e9ho v\u00fdrazu tv\u00e1\u0159e, z netrp\u011blivosti v hlase, ze zvednut\u00e9ho obo\u010d\u00ed nebo ze v\u0161ech t\u011bch dal\u0161\u00edch nespo\u010detn\u00fdch n\u00e1znak\u016f, kter\u00e9 prov\u00e1zej\u00ed soci\u00e1ln\u00ed situace, \u017ee te\u010f je na \u0159ad\u011b n\u011bkdo jin\u00fd a m\u00e1 v \u00famyslu n\u011bco \u0159\u00edct. […] Co ses nau\u010dil v jedn\u00e9 chv\u00edli, neum\u00ed\u0161 nijak p\u0159ev\u00e9st do nov\u00fdch okolnost\u00ed. Jen kdyby nastala p\u0159esn\u011b stejn\u00e1 situace, dok\u00e1\u017ee\u0161 pou\u017e\u00edt to, co ses nau\u010dil. Takto vid\u011bno jsi vlastn\u011b n\u011bco jako soci\u00e1ln\u00ed fundamentalista: Pro tebe m\u00e1 ka\u017ed\u00e1 soci\u00e1ln\u00ed situace vlastn\u00ed hodnotu a exkluzivn\u00ed postaven\u00ed, je\u017e \u010din\u00ed zku\u0161enosti z n\u00ed na\u010derpan\u00e9 nepou\u017eiteln\u00e9 v situaci dal\u0161\u00ed“ (str. 81).<\/p>\n\n\n\n

„Ty s\u00e1m jsi tak\u00e9 tak trochu paradox, mus\u00edm ti \u0159\u00edct, slo\u017eit\u00fd, nevypo\u010ditateln\u00fd a n\u00e1ro\u010dn\u00fd, nikdy se s tebou \u010dlov\u011bk nenud\u00ed, v\u017edycky n\u011b\u010d\u00edm p\u0159ekvap\u00ed\u0161 a nen\u00ed ti snadn\u00e9 rozum\u011bt. Jsi jako s\u00e1m jazyk, Gabrieli“ (str. 124).<\/p>\n\n\n\n

Br\u00e1cha nen\u00ed aspar\u00e1gus<\/strong><\/h2>\n\n\n\n

Br\u00e1cha nen\u00ed aspar\u00e1gus, V\u011bra Hud\u00e1\u010dkov\u00e1 Barochov\u00e1, Albatros, 2025, 144 s., 8+<\/strong><\/p>\n\n\n

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Zdroj: www.preskoly.sk<\/a><\/figcaption><\/figure>\n<\/div>\n\n\n

Pr\u00edbeh z poh\u013eadu 13-ro\u010dnej Lindy, ktor\u00e1 m\u00e1 o dva roky star\u0161ieho brata Filipa. Ten je na spektre, m\u00e1 Aspergerov syndr\u00f3m. Maminka pracuje len p\u00e1r hod\u00edn t\u00fd\u017edenne, aby sa mohla stara\u0165 o Filipa, ke\u010f nie je v \u0161kole a doprev\u00e1dza\u0165 ho na terapie. Otec pracuje ako kuch\u00e1r na lodi, preto dlhodobo absentuje doma v rodine. Jeho nepr\u00edtomnos\u0165 \u0165a\u017eko nes\u00fa obidve deti. Linda o tom otvorene rozpr\u00e1va. Filip to s\u00edce nevyjadruje verb\u00e1lne, av\u0161ak od odchodu otca sa jeho spr\u00e1vanie v\u00fdrazne zhor\u0161ilo.<\/p>\n\n\n\n

Kniha je vhodn\u00e1 pre die\u0165a, ktor\u00e9 m\u00e1 s\u00farodenca na spektre. V\u010faka nej zist\u00ed, \u017ee nie je v takej situ\u00e1cii samo, \u017ee aj in\u00e9 deti za\u017e\u00edvaj\u00fa nie\u010do podobn\u00e9 ako ono.<\/p>\n\n\n\n

Z\u00e1rove\u0148 je u\u017eito\u010dn\u00e9, ak po knihe siahnu aj rodi\u010dia, ktor\u00ed maj\u00fa okrem die\u0165atka na spektre aj die\u0165atko, ktor\u00e9 je neurotypick\u00e9. V\u010faka Linde a jej pocitom maj\u00fa mo\u017enos\u0165 vc\u00edti\u0165 sa do jej pre\u017e\u00edvania, vn\u00edmania jednotliv\u00fdch situ\u00e1ci\u00ed a \u00falohy a miesta v rodine.<\/p>\n\n\n\n

Kniha upozor\u0148uje na problematiku neurotypick\u00e9ho die\u0165a\u0165a v rodine. Zachyt\u00e1va Lindin vn\u00fatorn\u00fd z\u00e1pas medzi snahou by\u0165 dobrou, bezprobl\u00e9movou dc\u00e9rou, ktor\u00e1 je v\u017edy, ke\u010f je to potrebn\u00e9, n\u00e1pomocn\u00e1 mame a bratovi a t\u00fa\u017ebou \u017ei\u0165 v norm\u00e1lnej rodine s bratom, ktor\u00fd na seba nestrh\u00e1va ne\u017eiaducu pozornos\u0165. Linda m\u00e1 pocit, \u017ee mama si ju nev\u0161\u00edma, a preto ju dostato\u010dne nepozn\u00e1. Filipovi venuje ove\u013ea viac svojho \u010dasu, \u00fasilia a pozornosti. Neprestajne si o\u0148ho rob\u00ed starosti a tr\u00e1pi sa kv\u00f4li nemu. Napriek tomu, \u017ee Linda si uvedomuje, \u017ee brat si objekt\u00edvne vy\u017eaduje vy\u0161\u0161iu mieru starostlivosti, je prirodzen\u00e9, \u017ee aj ona t\u00fa\u017ei po pozornosti mamy. <\/p>\n\n\n\n

\u010ealej je v knihe pouk\u00e1zan\u00e9 na d\u00f4le\u017eitos\u0165 a v\u00fdznam priate\u013estva pre neurotypick\u00e9 die\u0165a. Pr\u00e1ve priate\u013eka Andy sa st\u00e1va pre Lindu v\u00fdznamnou podporou. <\/p>\n\n\n\n

Dopisy Samovi : D\u011bde\u010dkova vypr\u00e1v\u011bn\u00ed o l\u00e1sce, ztr\u00e1t\u011b i darech \u017eivota<\/strong><\/h2>\n\n\n\n

Dopisy Samovi : D\u011bde\u010dkova vypr\u00e1v\u011bn\u00ed o l\u00e1sce, ztr\u00e1t\u011b i darech \u017eivota. Daniel Gottlieb, BETA, 2007, 208 s., \u010desk\u00fd jazyk<\/strong><\/p>\n\n\n

\n
\"\"<\/a>
Zdroj: www.databazeknih.cz<\/figcaption><\/figure>\n<\/div>\n\n\n

N\u00e1dhern\u00e1, l\u00e1skypln\u00e1 kniha pln\u00e1 hlbok\u00fdch my\u0161lienok, ktor\u00e1 pohlad\u00ed na du\u0161i. Je p\u00edsan\u00e1 vo forme listov star\u00e9ho otca (psychol\u00f3g, po autonehode bol kvadruplegik) svojmu vnukovi Samovi (mal autizmus).<\/p>\n\n\n\n

Otv\u00e1ra r\u00f4zne t\u00e9my: rodina, \u0161kola, s\u00facit, sklamanie, hnev a spravodlivos\u0165, boles\u0165 a hojenie r\u00e1n, v\u00fdznam nevedomosti, sex, strach, zmeny, \u0161ikana, hanba, \u0161\u0165astie, odolnos\u0165, pozornos\u0165, nadh\u013ead, smr\u0165 a in\u00e9. Pri ka\u017edej z nich dominuje m\u00fadros\u0165 a \u017eivotn\u00e9 sk\u00fasenosti, l\u00e1ska, pochopenie a z\u00e1ujem star\u00e9ho otca.<\/p>\n\n\n\n

„Same, kdy\u017e jsem s tebou \u017eil sou\u010dasnost\u00ed v\u0161\u00edmal si, co se d\u011bje pr\u00e1v\u011b v tomto okam\u017eiku, byl jsem nesm\u00edrn\u011b \u0161\u0165astn\u00fd. Kdy\u017e se m\u00e1 mysl vr\u00e1tila k minulosti a k tomu, co jsem ztratil, dostavila se bolest. A sotva se my\u0161lenky zatoulaly do budoucnosti a k m\u00fdm touh\u00e1m, bolest tu byla znovu.<\/p>\n\n\n\n

Tak trp\u00ed spousta n\u00e1s dosp\u011bl\u00fdch – bu\u010f se pokou\u0161\u00edme \u017e\u00edt \u017eivot, ktor\u00fd jsme ztratili, nebo \u017eivot, po jak\u00e9m tou\u017e\u00edme. Toho dne jsi mi p\u0159ipomn\u011bl, \u017ee \u017eivot je mnohem kr\u00e1sn\u011bj\u0161\u00ed, kdy\u017e \u017eijeme t\u00edm, co m\u00e1me“ (str. 192).<\/p>\n\n\n\n

„Autismus dok\u00e1\u017ee kr\u00e1st p\u0159\u00edle\u017eitosti ke kontaktu, sbl\u00ed\u017een\u00ed a l\u00e1sce. Je podivn\u00fdm paradoxem, \u017ee kdyby bylo tv\u00e9 autistick\u00e9 posti\u017een\u00ed z\u00e1va\u017en\u011bj\u0161\u00ed, ubli\u017eovala by ti ztr\u00e1ta tv\u00fdch p\u0159\u00edle\u017eitost\u00ed m\u00e9n\u011b. Proti\u017ee v\u0161ak tv\u016fj autismus tak z\u00e1va\u017en\u00fd nen\u00ed, m\u016f\u017ee\u0161 si uv\u011bdomovat, \u017ee ti sch\u00e1zej\u00ed d\u016fle\u017eit\u00e9 schopnosti pro kontakt s lidmi – m\u016f\u017ee\u0161 si uv\u011bdomit, \u017ee jsi jin\u00fd, toto v\u011bdom\u00ed ti m\u016f\u017ee zp\u016fsobit bolest“ (str. 32-33).<\/p>\n","protected":false},"excerpt":{"rendered":"

Z poh\u013eadu matky: Mat\u011bj maluje mapy. Michaela Ho\u0161kov\u00e1 Ke\u010f dva a dva je p\u00e4\u0165 (Z\u00e1pisn\u00edk matky). L\u00fddia Podobn\u00e1 Z\u00e1pisky m\u00e1my autisty. Hana Hnili\u010dkov\u00e1 Maminko, nezp\u00edvej. Jana Makovcov\u00e1 S rukama na u\u0161\u00edch. Jana Makovcov\u00e1 Z poh\u013eadu otca: Mil\u00fd Gabrieli. Halfdan W. Freihow Z poh\u013eadu s\u00farodenca: Br\u00e1cha nen\u00ed aspar\u00e1gus. V\u011bra Hud\u00e1\u010dkov\u00e1 Barochov\u00e1 Z poh\u013eadu star\u00e9ho otca: Dopisy […]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_monsterinsights_skip_tracking":false,"footnotes":""},"class_list":["post-191","page","type-page","status-publish","hentry"],"yoast_head":"\nKnihy o PAS z perspekt\u00edvy rodi\u010dov \u010di s\u00farodencov - SOS PAS<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.sos-pas.sk\/?page_id=191\" \/>\n<meta property=\"og:locale\" content=\"sk_SK\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Knihy o PAS z perspekt\u00edvy rodi\u010dov \u010di s\u00farodencov - SOS PAS\" \/>\n<meta property=\"og:description\" content=\"Z poh\u013eadu matky: Mat\u011bj maluje mapy. 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